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Putting the patient’s voice first as an ITP caregiver

More videos

Pushing back

Quality of life

Staying open to change

The key request

Recognizing gaps

Releasing reins

Two skills

Hesitant doctors

Bruise or clot?

Staying flexible

Tell your doc

See more videos

Jamie Askari describes how she approaches supporting her son in his doctor’s appointments, without undermining his voice and autonomy.

Transcript

Really important not to undermine a patient’s independence, whether they’re, you know, 5 years old, 16 years old, or 50. You know, at any age.

Read More

I think it’s incredibly important to let the patient speak first, ask their questions, address their concerns with their physician, their specialists, and then as a care partner, caretaker, caregiver. We come in second with our concerns, with our issues, but I think it’s incredibly important that the patient advocates for themselves as much as they can. You know, again, if they’re a child, they might not always be able to vocalize or speak to their issues. But I do think it’s really important to give them their independence and let them speak first.

More videos

It’s OK to tell your doctor when your ITP treatment isn’t working
Why quality of life matters with ITP as much as platelet levels
Be cautious: Some ITP bruises may actually be a blood clot
Why some ITP doctors may not switch a patient’s treatment
See more videos
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