Jamie Askari, an immune thrombocytopenia caregiver advocate, discusses the importance of ongoing communication with healthcare providers and remaining open to new treatment options as ITP care evolves.
Transcript
This is a very interesting topic when it relates to ITP and our experience, because my husband is also a physician. And so he was a very difficult caregiver, I would say, in terms of his relationship with my son’s hematologist.
He was emailing her constantly. He was calling her, he was all over her. And our pediatrician called us and said, “Look at you can’t email her constantly. You can’t be bombarding her. She knows what her job is. She’s good at her job. I trust her and I want you to trust her too.”
So we had a pretty incredible experience with that. And I would say, you’ve got to trust your doctors. They’re the experts. They’re the ones that have seen these things many, many times. They’ve dealt with this with many patients. They’ve trained.
And I think we need to let them do their thing. When we don’t, we can be labeled difficult. And I think in order to get the best care, you’re going to have to let them do their thing and kind of trust in the process.
