Living with a rare and chronic illness of any kind can be stressful, scary, and even isolating. Many of these conditions don’t have a cure,…
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Being chronically ill with multiple rare diseases has changed my life in unimaginable ways. In addition to my health and physical abilities, my day-to-day life,…
Tween boys are as rough and tough as they can be. I know this because I have two — an 11-year-old and a 10-year-old, both…
Note: This column describes the author’s own experiences with Wegovy (semaglutide) and Foundayo (orforglipron). Not everyone will have the same response to treatment. Consult your…
People who aren’t sick with a rare or chronic illness can have a hard time understanding what life is like for those of us who…
Ow, that’s going to leave a bruise, I thought to myself as I rounded the table that day and caught my hip on the corner.
Living with rare and chronic illnesses can be complicated, stressful, and draining. There are the obvious reasons, such as feeling sick, undergoing treatment, dealing with…
For me, summer break is both the best and worst time of year as a parent living with rare and chronic illnesses. I have wild…
The COVID-19 lockdown was one of the most unprecedented events in recent history. We were dealing with a strange virus, being urged to wear face…
I used to measure my daughter’s days in small, ordinary ways. Our house runs on routines, calendars, and controlled chaos, so I’d measure days by…
