“How are you feeling?” Who knew a simple, well-intentioned question could stir up so many emotions? I hear it several times a week, and it…
Columns
Reflecting on my health history, I often wonder whether my past medical issues were early warning signs of a rare blood disorder or simply unrelated…
Note: This column describes the author’s own experiences with cefdinir and Soliris (eculizumab). Not everyone will have the same response to treatment. Consult your…
Immune thrombocytopenia (ITP) is a rare, autoimmune blood disorder that causes the immune system to attack and destroy blood platelets, which are essential for…
Living with a rare disease means that each day can bring a strange new adventure. Many doctors are either surprised or perplexed when they meet…
One disease becomes two, then two become three — each with its own comorbidities and complications. When I was diagnosed with yet another autoimmune disease,…
My favorite time of year is nearly upon us: the winter holiday season! In my household, in addition to the regular holidays, we celebrate everyone’s…
I currently have bruises on my left foot, ankle, calf muscle, and shin; right foot, ankle, shin, elbow, and shoulder blade; lower back; top left…
I watched in horror as the muscle distortion from an intense charley horse moved down my lower leg, bruising my skin as it went. It…
Life with chronic and rare illnesses is interesting, to say the least. I have to manage new and existing symptoms, visit medical providers, and stay…
