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It’s OK to tell your doctor when your ITP treatment isn’t working

More videos

Patient’s voice first

Pushing back

Quality of life

Staying open to change

The key request

Recognizing gaps

Releasing reins

Two skills

Hesitant doctors

Bruise or clot?

Staying flexible

See more videos

Shalana Jordan describes how she calmly and kindly approaches telling her doctor when an aspect of her treatment isn’t good enough.

Transcript

I think this is something a lot of people deal with because sometimes doctors do blow you off. Sometimes something doesn’t seem as serious to them because they see patients all day, every day.

Read More

So it’s just about having a clear and calm conversation. But you’re not trying to be confrontational, you’re not trying to be angry. You just want to talk to them about it. And I feel like if that’s a problem for someone, then you also have the option to write it down. Write down your thoughts so you know you’re communicating everything you want to say. And you can send that in the patient portal, send it in an email, send it to the nurse, or read that in a doctor’s appointment.

More videos

Why quality of life matters with ITP as much as platelet levels
Be cautious: Some ITP bruises may actually be a blood clot
Why some ITP doctors may not switch a patient’s treatment
The two skills that changed how I navigate ITP
See more videos
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