Living with a rare disease often means feeling unseen and alone, even when surrounded by supportive family, friends, and a medical team. While they certainly…
Columns
“How are you feeling?” Who knew a simple, well-intentioned question could stir up so many emotions? I hear it several times a week, and it…
Reflecting on my health history, I often wonder whether my past medical issues were early warning signs of a rare blood disorder or simply unrelated…
Note: This column describes the author’s own experiences with cefdinir and Soliris (eculizumab). Not everyone will have the same response to treatment. Consult your…
Immune thrombocytopenia (ITP) is a rare, autoimmune blood disorder that causes the immune system to attack and destroy blood platelets, which are essential for…
Living with a rare disease means that each day can bring a strange new adventure. Many doctors are either surprised or perplexed when they meet…
One disease becomes two, then two become three — each with its own comorbidities and complications. When I was diagnosed with yet another autoimmune disease,…
My favorite time of year is nearly upon us: the winter holiday season! In my household, in addition to the regular holidays, we celebrate everyone’s…
I currently have bruises on my left foot, ankle, calf muscle, and shin; right foot, ankle, shin, elbow, and shoulder blade; lower back; top left…
I watched in horror as the muscle distortion from an intense charley horse moved down my lower leg, bruising my skin as it went. It…
