Shalana Jordan,  —

Shalana “Shay" Jordan of central Florida, is a photographer, writer, retired educator, and mom of two boys. She's learning how to live with her “new normal" of battling atypical hemolytic uremic syndrome (aHUS), stage 4 kidney disease, Lupus, May-Thurner syndrome, immune thrombocytopenic purpura (ITP), severe anemia and uncontrolled hypertension. She received her aHUS diagnosis in 2020 at 36 years old. Being a part of the company that publishes this website, BioNews, means she can take part in helping fellow rare disease patients adjust to and prepare for the new life that’s unfolding for them. Because life doesn’t end at diagnosis. Hearing someone else’s real life experience with the “unknown" is invaluable. Being rare can be very lonely but BioNews advocates every single day to help patients realize they're not so alone after all.