High levels of anxiety and alexithymia, or difficulty in recognizing and expressing emotions, are associated with significantly poorer quality of life in people with primary…
Living with a rare disease often means feeling unseen and alone, even when surrounded by supportive family, friends, and a medical team. While they certainly care, people can’t truly experience the daily reality of our illnesses. That’s why, when I heard one of my rare diseases featured on a mainstream…
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The many types of von Willebrand disease may be much more common globally than previously thought, a large study of more than 800,000 people…
