Discussion
In a clinical trial involving adults with hard-to-treat immune thrombocytopenia (ITP), adding a 12-week course of a vitamin A-derived compound called all-trans retinoic acid…
This week is an important one for our community! It’s time for the annual Bleeding Disorders Conference (BDC), which is hosted by the National Bleeding Disorders Foundation (NBDF) and provides an opportunity for the bleeding disorders community to come together for critical education, advocacy conversations, connection, and lots of…
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Discussion
Discussion
Starting plasma exchange — a procedure to replace a portion of a patient’s blood with that of a healthy donor — within one day of…
Discussion
Being chronically ill with multiple rare diseases has changed my life in unimaginable ways. In addition to my health and physical abilities, my day-to-day life,…
