For me, summer break is both the best and worst time of year as a parent living with rare and chronic illnesses. I have wild…
Two teenage brothers in Egypt have been diagnosed with an extremely rare combination of two distinct genetic blood-clotting disorders. The boys carry the genetic mutations for both thrombotic thrombocytopenic purpura (TTP) and atypical hemolytic uremic syndrome (aHUS). Even though they’ve required medical treatment since early childhood, neither was…
Latest news & perspectives
A 96-year-old woman with inherited type 2A von Willebrand disease and previously mild symptoms experienced a sudden worsening of bleeding after developing acquired von…
